Who Will hold my hand? Caregiving in America Resource list for families and unpaid caregivers
Diane Finnestead MAT, Ed. S.
Associations for Disease Research, Advocacy and/or Funding
- ALS- www.als.org
- Alzheimers Association www.alz.org
- American Cancer Society www.komen.org
- American Heart Association
- Breast cancer Susan G Komen www.komen.org
- Family Caregiver Alliance www.caregiver.org
- American Kidney Fund Foundation www.kidneyfund.org
Care Coordination/ Social Work
- American Case Management Association www.acmaweb.org
- Care Choice Care Management, LLC www.carechoicestl.com
Elder Law
- Eldercare locator https;//eldercare.acl.gov
- NAELA National Association of Elder Law Attorneys https://www.naela.org
General Senior Resources
- AAA Area Agencies on Aging – Eldercare Locator www.eldercare.acl.gov
- www.caregiverlist.com or www.payingforseniorcare.com
- www.caring.com
- AARP www.aarp.org
- Medicare Part B Application
- Medicare Application for Employer Verification
- So, You Have Medicare, Now What?
Home Health care Associations
- NAHC National Association for Homecare and Hospice www.nhac.com
- HCOAOA- Home Care Association of America www.hcaoa.org
Mental Health
- NAMI- National Alliance on Mental Health www.nami.org
- Call the NAMI Helpline at 1-800-950-6264 or chat with them M-F !0 am -!0 pm EST
- In a crisis, text “NAMI’to 74141 for 24/7, confidential, free crisis counseling.
- AA- Alcoholics Anonymous www.aa.org
- Al-anon Family Groups www.al-anon.org
- Elder Abuse- The national domestic violence hotline www.hotline.org
Nutrition, Wellness Programs and/or gym membership
- Silver Sneakers offered by Medicare Advantage www.silversneakers.com
- Renew Active www.uhcmedicaresolutions.com
- YMCA www.ymca.org
- Mirrowitz Center- located in St. Louis welcome to all www.mirowitzcenter.org
Placement Resources for varying levels of care
- A Place for Mom www.aplaceformom.com
- Care.com www.care.com
- Assisted Living Locators www.canopywell.com
- Transitions for Senior Living in the St. Louis area www.transitionsforseniorliving.com
Radio Shows/Podcasts;
- ‘We’re Having a Senior Moment’ hosted by Shawn Rimmerman www.comforcare.com
- Google Valerie Van Booven RN, BSN for topics including home care
Resources for Prescription Drug Discounts:
Did you know that every drug in America has to have a drug discount program- the trick is finding it! Try this:
- www.HoneyBeeHealth.com
- www.Blinkhealth.com
- www.rxoutreach.org – a non-profit pharmacy, click the PATIENTS tab to get started
- www.rxcut.com – print the card to access discounts at local Walgreens and other pharmacies
- www.goodrx.com – enter name of drug to search prices
- www.needymeds.com
- Conduct a Google search with the name of your drug followed by the keywords “generic, coupons, discounts, manufacturer’s coupons or discount, trials, Canada, International”
- Check with my friend Marty Portnoy at www.yousaveonmeds.com or 888-949-0076 for assistance with Rx pricing for expensive or specialty drugs
- For those needing diabetic supplies; delivered to your doorstep for free- reach out to Advanced Diabetes Supply in Carlsbad, CA www.northcoastmed.com
- For future updates and options text 314-302-5743 Diane Finnestead
Safety
- Around the Clock Medical Alarms- www.334SAFE.com
- Find Durable Medical Equipment suppliers- www.hme-business.com
Senior Care Organizations- collectively members serve every need
- www.HelpmeSusan.org
- Breakthrough Coalition www.breakthroughcoalition.org
Senior Expos;
Want to launch an Expo in your community?
Contact Leader Publications- www.myleaderpaper.com
Veterans Benefits and Support Programs;
- Vet Assist www.veteranshomecare.com
- The Kaufman Fund www.thekaufmanfund.org
- Champ Dogs www.champdogs.org
- Warrior Surf Foundation www.worriersurf.org
Note- Medicare Advantage companies typically have resource funding available to offset costs such as home repairs or modifications, etc- this may be income based- call the customer service number on the back of your card or text CALL to 314-302-5743 or 314-920-3990.
Disclaimer- This list is by no means complete or an endorsement for a service, product and/ or company. This list is to be used as a starting point and was created to help you. When you would like to add a resource or need additional resources text RESOURCE to 314-302-5743 or 314-920-3990.